Child’s Facebook Picture Leads To Diagnosis Of Rare Eye Condition

(Memphis) Like most parents, Tara Taylor posted a picture of her 3-year-old daughter Rylee on Facebook to show friends.

She was proud because her daughter had fixed her own hair like a princess.

Taylor had no idea how that picture would end up helping her child.

In the picture Rylee’s left eye was glowing.

While most people would have thought it was caused by the flash, two of Taylor’s friends told her there might be something wrong with her eye.

“They said ‘Hey, I’m sure it’s nothing. It’s probably the lighting, but your daughter’s eye is glowing and you might want to have it checked out because it’s a sign there could be an issue with her eye,’” said Taylor.

Rylee was taken to her pediatrician and later to a retina specialist with Baptist Eye Clinic.

She was diagnosed with Coat’s disease, a rare condition that causes vision loss or blindness in one eye.

Dr. Jorge Calzada with the Charles Retina Institute and Baptist Eye Clinic said the earlier they can treat children, the better.

“The significant problem we have with children is that a child won’t say, ‘Mommy, I can’t see out of my right eye.’ It is usually caught in an expected way. When a child recognizes he cannot see or the parent recognizes they cannot see, it’s often because they’ve lost vision in both eyes,” said Dr. Calzada.

Taylor said she had no indication her daughter was having any trouble seeing.

In fact, she says it was quite the opposite.

“She didn’t sit close to the TV. She is actually in gymnastics and can walk on the balance beam,” said Taylor.

She’s grateful to the friends who pointed out the problem.

Baptist received a $550,000 grant from the Baptist Memorial Health Care foundation to open its ‘state of the art’ eye clinic at the Women’s Hospital.

The eye clinic treats children and even premature babies.

27 comments

  • aimlessdaze

    Those friends are simply wonderful to pick up on that and alert the Mom. Hope this little one can continue to see… <3

  • Skye

    So happy they caught it early. Eye problems are not fun in a child. Praise God!
    I can relate. My now 19 month old was born with phpv. Persistent hyperplastic primary virteous. Where one eye doesn’t fully develope in the womb But goes undetected. In his case his eye test came back normal but by two wks old I kept noticing a white speck in his eye at certain angles. Turns out his condition led to a cataract. They removed It, however, even after multiple surgeries he Is unable to use his left eye.

    • JohnBurgermeistermeisterburger

      Praise god for giving a little girl an eye disease that could render her blind? No, you need to stop coddling god when he does something bad. When our puppy poops on the carpet, we don’t praise him.
      We rub his nose in it and then hit his nose with a newspaper. When our children draw on the walls with crayon, we don’t praise them; we punish them. When a person commits a crime, we don’t praise them, we punish them by putting them in jail. How is god ever going to learn to stop blinding children or giving them birth defects if you actually PRAISE him and worship him for it, acting like he did something GOOD? Don’t be an enabler. Hold him responsible for his actions. Time to rub his nose in his turds.

      • Skye

        I’ll pray for you. You obviously are uneducated where my God is concerned. It is not man’s job to hold God accoutable but quite the opposite.

      • Skye

        Before my last comment is misinterpreted. Let me say, we are suppose to hold Him acountable to word. But nowhere does it say we won’t suffer on earth. Only he shall put no more on us than we can handle

      • Colossians 1:16

        The god that is in your imagination is weak and pathetic if you can hold it accountable.

      • Skye

        My God is not weak.! By accountable I mean as Jacob did in Genesis, through prayer. If you have a need pray. phillipians 4:19 says he will supply your needs need healing pray. God says he will heal us. Isaiah 53:5 we are healed. I guess I’m trying to say stand on the promises of God but don’t question his authority or the time or way in which he does things.

      • Skye

        Oh ok. Even so I felt I needed to elaborate on my earlier reply about holdong God accountable. I was afraid someone would misunderstand and think I was saying we make him answer for His actions. Which, was nowhere near what I meant obviously.

        By the way love the verse. Colossiams 1:16.

      • Deborah

        WOW. It’s pretty clear that you do not know the Bible. God is perfect, sinless and incapable of anything bad. If you realized this you would be ashamed of your statements about God.

  • Hunter's Journey with Coats Disease

    So happy this little girl’s Coats was caught early. My son also has Coats Disease diagnosed at 4 months at St. Jude’s. Dr. Calzada is our sons retina specialist. We travel from Oklahoma every three months to Baptist Women’s for treatment its a wonderful hospital.

  • Christina

    I do believe my son has Coat’s Disease as he also has the glowing in his left eye and doctors tell us he has 20/400 vision in that eye. How could we go about getting in touch with this Baptist Women’s center to see if we would qualify for treatments? We are from Topeka, KS

  • Beth

    Our son has coats’ disease as well. He has total loss of
    Vision in the affected eye. We never knew to look for signs such as the yellow eye in pictures. Bless your friends for noticing and pointing it out!

  • Elizabeth Leys

    My son was diagnosed with Coates at 18 months. He not only has it in one eye but he has it in both eyes which is very rare. He will turn 14 in June. He it’s a true miracle so keep the prayers coming for this family. My son still deals with some difficulties but he is a strong young man. He jUst made the Jv soccer team for his school. The biggest challenge he is about to face is that we were told he wouldn’t be able to drive. He has beaten a lot of odds that were not given up. Rylee was blessed that her mother’s friends were very observant. Coates is such a rare disease that has a lot of research needed to help these kids have a normal healthy life! !

  • Lynn

    Same thing happened to my son. He is now 24, although, a few things he
    should not do to keep his non affected eye from becoming injured, he has not let it affect his life. Safety glasses in some sports thru out his life. They adjust since they are little kids. It’s a a lot harder to loss your vision and adjust in one eye as a adult. Our brain shuts off the bad vision automatically takes the better eye to see. Or so that is what his SD, CA. Dr’s say. He says sometimes he sees double but for the most part. Has a full time job and drives.. Hang in there everyone! But do not treat them different let them enjoy sports just safety in mind. My son played baseball but just had to swing sooner, self taught, he wrestled in HS,surfs, waterskis, snowboards, horseback rides and loves to fish!! Coates did not hold him back and I tried to teach that to him, everyone has something special. 💛

  • stephen mooney

    to the reporter of this add … you have a lazy eye … you should get it checked out … :)

  • Dorothy

    My daughter has amblyopia, she’s blind in one eye. We patched forever when she was little. I had never heard of coats. Hope everything goes good.

Comments are closed.

Follow

Get every new post delivered to your Inbox.

Join 10,860 other followers